Monthly Archives

April 2019

Babe In My Arms, Babe In My Belly, Babe In My Heart, Blogs, Uncategorized

Q and A with Mira

April 26, 2019

Education and information is so important, especially the world of infertility. The more we know about our bodies and how they work, the better chance we have of conceiving. Mira was created to help with just that.

  • What prompted you to create Mira? Was it experience with infertility or something else?

I believe women need to have more education and control over their own health. Right now, information is generally owned by the hospital, but life decisions are made by the consumer. There is a huge gap. If we could access our own health data in an easy to understand way, it could greatly help us guide our own lives and decisions related to our health and it could empower us to increase our life quality. This is especially true for women, who face the challenge balancing work and life, and whose decision directly affects the family plan. 

  • How does Mira work exactly?

Mira works through a palm sized hospital-grade analyzer and disposable test wands. Users simply dip one of the disposable Mira Wand into a urine sample then insert it into the Mira Analyzer. A quantitative analysis is conducted and data is automatically synced to the Mira app through Bluetooth. This makes at-home health testing and hormone analysis easy and convenient. The AI in the Mira App then learns personal health patterns, providing personalized health and fertility insights to each individual user.

  • What is the purpose of tracking these fertility hormones? What can they tell us about fertility?

For those trying to conceive, there is a limited number of days per cycle where they can actually conceive. As you can imagine, tracking your fertility hormones and knowing exactly when ovulation and these fertile days occur is essential to getting pregnant in a timely manner.

Fertility hormone changes are an extremely accurate predictor of ovulation and your peak fertile window. During a menstrual cycle, a sudden surge of Luteinizing Hormone (LH) triggers the release of a mature egg. This is what is known as “ovulation”. LH hormone concentrations can be measured in urine and blood. This sharp surge of LH tells you that ovulation is about to occur within 24-48 hours. These are the two most fertile days for those trying to conceive! Every women has different hormone levels and even hormone levels can change from cycle to cycle for each person as well. Personalization is very important to achieve effective outcomes. Mira’s AI learns each individual’s home pattern so we have the best accuracy that specifically optimized for the individual.

  • What makes Mira different than an OPK?

Currently, all hormone-based fertility trackers on the market try to predict ovulation based on a hard hormone threshold for the LH surge?(based on the population average). This is due to the fact that they cannot measure the actual hormone level, they can only measure whether it is above or below a certain level. The problem is that not all women correspond to this threshold. On the other hand, it is nearly impossible for women to go to hospital for a quantitative hormone test every day. Mira is the tracker that gives women the opportunity to receive actual hospital-grade hormone readings in the comfort of their home.

  • Where do you see the Mira product(s) going a couple years from now?

We see Mira becoming a comprehensive at-home women’s health testing platform. From trying to avoid pregnancy, trying to conceive, fetal health, menopause, to disease tracking, Mira will empower users to take control of their health. All future test wands and tests will be compatible with the same Mira Analyzer but using different test wands. The Mira App AI interprets and analyzes what you could do with the test results. Health tips and recommendations will be provided to you in a personalized way. It’s essentially a clinical lab in the comfort of your home. We want Mira to be a trustworthy health partner and one stop solution, regardless what life stage you are at.

  • What is the biggest thing, in your opinion, that needs to change about the fertility and women’s health space?

We think medical diagnostic testing and treatments will move from the doctor’s office setting to the consumer setting through telemedicine. Consumer health products are becoming more and more clinically relevant. Continuous at-home health tracking will give doctors insights and access to data that they have never had access to before, and AI will help them crunch this data to help analyze and extract insights. Health tech is moving to the digital space and consumers will have much more control of their health. Mira is proud to be part of this empowerment and we strive to keep pushing the boundaries of at-home diagnostic health testing and quality of life for all our users!

If you’d like to learn more about Mira, you can find them on Instagram, Facebook, Twitter or their Website!

***Also be sure to use the code WTF30 for $30 off your purchase!***

Babe In My Arms, Babe In My Belly, Babe In My Heart, Blogs, Uncategorized

Cayson – Against All Odds

April 22, 2019

Written by Sunsarae Jackson, Guest Blogger

Cayson: Courageous and tough; Unrelenting.

Courageous – Not deterred by danger or pain

Tough – Strong enough to withstand adverse conditions or rough or careless handling.

Unrelenting – Not softening or giving in easily.

I believe GOD allows you to go through things so that you can share your story. You never know how sharing your story can bring healing to someone else. I was diagnosed with PCOS back in 2000. Over the past 14 years we’ve attempted to start our family. We were unsuccessful after many failed attempts of IUI using trials of Clomid, Letrozole and Gonal F.

Although no one would choose to have fertility issues, I thank GOD that the technology exists to help those of us who do. I believe GOD uses medicine to assist those who struggle with fertility to have hope. As a woman who has tried to get pregnant many times, attempting and failing was the hardest thing ever.

When starting treatment there is so much hope that maybe this time the meds will work and we will reach our goal of getting a healthy follicle to grow. To returning the day of ultrasound just to be told the meds didn’t work and there was no follicular growth at all. It’s just heartbreaking. Going through this caused so much pain in my marriage. Feelings of inadequacy on my part. Thoughts of not being worthy to be a mother. Did GOD put this promise in my heart to be disappointed over and over again, surely not.

Over the years we prayed and prayed to become parents. About 4 years ago I reached out to The Doctors TV for help. See the outcome of that reach below:

Journey to Pregnancy

http://www.thedoctorstv.com/articles/2731-journey-to-pregnancy

Weight and Infertility

http://www.thedoctorstv.com/articles/2861-weight-and-infertility

Here we were about to embark on the journey to become parents once again, this time it was different. We felt a sense of hope. The doctor we were working with set realistic expectations with us. During our initial consult he explained that with my history he was pretty confident we could get pregnant but that it may not happen the first time around. He wanted us to be prepared to face several trials as we tried different meds. We agreed and we began our journey on an IUI Cycle March 11, 2018.

I remember March 26, 2018 like it was yesterday.  It was the last time I’d be checked to see if any follicles had matured. The ultrasound was done and the doctor found one follicle had matured. In that moment I broke down crying the happiest of tears, in that moment I knew I was going to be a mother. I knew after all the years of praying, treatments and trying that this time was going to be successful. I recall the doctor saying “Don’t cry yet, it’s the first step” in case I didn’t get pregnant he didn’t want me to be discouraged. In my heart I knew this was it! Before I left his office I was given further instructions and told to take a home pregnancy test on April 9, 2018. The time between March 16 and April 9 seemed to take forever. Everyday that went by I would look for signs that I was pregnant. Signs based on things that I’d read or heard that one would feel as I’d never experienced pregnancy for myself.

The first sign arrived on April 2, I was exhausted. I’d never been so excited to feel this way. I know it may sound weird, but it’s what happens when you’ve wanted something for so long. Over the next few days I’d began to experience more symptoms as well. I was so sure I was pregnant I wanted to test early. I’d spoken to my husband and he thought I should wait so that if the test was negative I wouldn’t be disappointed. We later decided I would take the test early with the expectation that my body may not have yet produced enough of the pregnancy hormone. I tested on April 7, it was negative. The next 2 days were the hardest to get through. I was so anxious.

It was 3:09am on April 9, 2018 test day! I awoke and took the test. This had to be the longest 3 minutes of my life. Then it happened, words I’d longed to read for what seems like a lifetime appeared on the screen “Pregnant”. We’d prayed for this day to come for as long as I can remember. Sometimes losing faith that our dream would come true. As a woman it’s hard when you’re asked, “When are you going to have kids?” My response has always been the same, “When GOD says so” Believing, but never knowing when he would.

I gave the clinic a call to inform them of the home test results, they setup bloodwork in order to confirm the pregnancy. On April 11, 2018 our babies pending arrival was confirmed. April 27, 2018 was the best day in the world, we heard babies heartbeat for the first time; it’s still the best sound in the world. The dr. advised that babies heart was strong and that it looked as it should for a baby at 4 weeks old.  Our last appointment at the clinic was May 11, 2018. We heard babies heartbeat for the 2nd time and we were released to obtain prenatal care. On May 30, 2018, we found out we were having a BOY!!!. We were so thrilled, all was going fairly well. Then on June 11, 2018 at 13 weeks our lives changed.We were at our visit with the perinatologist. The ultrasound tech had come in and completed the initial ultrasound. When the doctor came in he explained to us that he found a small abdominal wall abnormality on our son called an Omphalocele.  This is a rare abdominal wall defect in which the intestines, liver and occasionally other organs remain outside of the abdomen in a sac because of failure of the normal return of intestines and other contents back to the abdominal cavity during around the ninth week of intrauterine development. Our world was rocked. He explained that this diagnosis would be confirmed at our 20 week ultrasound.

The time between June 11 and July 30, 2018 was very rough on us. At times I would break down crying and praying, praying and crying. July 30, during our 20 week ultrasound it was confirmed that our son had 1 of 2 possible abdominal birth defects, Gastroschesis or Omphalocele. It was explained to us that babies with this defect often have additional abnormalities or genetic conditions. After explaining the differences of the conditions to us we were given some options to think about regarding whether or not to continue with the pregnancy.

The first option was to have an amniocentesis to see if the baby had any additional genetic abnormalities. This is where a needle is inserted into the woman’s stomach and fluid is drawn and then sent to be tested. This test came with a small chance of miscarriage. The second option was Termination. This would mean ending the pregnancy. The Third was to proceed with the pregnancy knowing and understanding the risks. We had already had genetic tests done that came back normal and decided against having the Amnio done. Termination was NEVER an option for us, we knew that GOD had chosen us to become parents after being married almost 14 years and after many failed attempts at fertility treatment. We would continue the pregnancy knowing the risks while continuing to pray for the best outcome possible.

After making our decision we were referred to a neonatologist, pediatric cardiologist and surgeon as their teams would be present at babies birth; along with Sutter Special Start, a program that would help with coordinating these appointments, support groups and a tour of the NICU. The next several weeks would be daunting, we would meet with all the specialists and take a tour of the NICU where the baby would go immediately after birth to be assessed and cared for.

August 2, 2018, we went to the pediatric cardiologist. We had a Fetal Echocardiogram done and …. Praise Report!!!! Our sons heart was fine, all 4 Chambers were there and it was the size it should’ve been. The cardiologist was looking to see if there was a hole in the lower chamber of the heart. This will be checked again when the baby is born.

August 10, 2018, we had the consultation with the surgeon. After speaking with her she gave us 3 possibilities.

  • Immediate surgery at birth for a cord Omphalocele.
  • Pray and wait for a small Omphalocele and then surgery at 1 year old.
  • Major and may need to wait months before baby comes home.

Sept 13, 2018 we met with one of the neonatologists that may be treating the our son the day of birth. We also took a tour of the WCC, Floors were L&D, Postpartum and NICU.

October 23, 2018 our twice weekly non-stress tests began, these tests are to check amniotic fluid levels, babies heart rate and activity. We would have these tests done up until the Friday prior to delivery.

We had our last visit with the perinatologists that had been following us on November 19, 2018. Ever since the diagnosis our son showed he was a fighter. Due to his size and the condition it was confirmed that I would have him via c-section. Although this wasn’t my choice, it was the best option for baby and I.

December 10, 2018 was the happiest day of our lives. At  2:08pm Cayson was delivered weighing 11lbs, 10oz and 21 inches long. He was born with a small omphalacele containing a portion of his intestines. After a few quick photos he was taken to the NICU for assessment and care. Through it all the lesson I learned is that no matter what is said or expected GOD can change the outcome! I expected that Cayson would spend months in the NICU but I prayed that he wouldn’t. GOD answered my prayers again, Cayson spent 6 days in the NICU and was released one day before our 14 year anniversary, he is the best gift we could’ve asked for.

Our son is our miracle!

I was reminded by a mom of the scripture in Jeremiah 29:11

For I know the plans I have for you,”declares the LORD,” plans to prosper you and not harm you, plans to give you a hope and a future.

If you’d like to connect with Sunsarae, you can find her on Instagram, Facebook or Twitter!

Babe In My Arms, Babe In My Belly, Babe In My Heart, Blogs, Uncategorized

Infertility Uncovered

April 20, 2019

Written by Jessica Di Bella, Guest Blogger

Photo credit: Cami Jane Photography

We started dating when we were only teenagers back in 2005— dreaming together what our wedding day would be like, how we would build a life together and of course, what our future babies would be like. The value of family and wanting to create one of our own one day, has always been a common value we treasured about one another. By being intentional in our prayers over parenthood, we believed that our desire was a calling the Lord had placed on our hearts not merely as a “lifestyle”,  but a ministry to further bring glory. 

Photo Credit: Lauren Scotti Photography

Our fertility journey began unknowingly in 2012 after we said, “I Do”. We decided to not use birth control, as we would have joyfully welcomed the gift of a child in the sanctity of our marriage, if the Lord saw fit, while we intended to use the first couple years to enjoy being husband & wife. Assuming we were just “really good” at avoiding getting pregnant without contraceptives, we decided that we were ready to start growing our family in January 2015. After 6 months, we knew deep down something wasn’t right. We decided to seek help through my OBGYN, who after running blood tests & ultrasounds, encouraged us to “keep trying” for another 6 months and was optimistic that would do the trick.

Fast forward 6 months… nothing.

A few more blood tests, a few more ultrasounds, a very painful HSG procedure… nothing. Convinced that it could possibly be my husband’s contribution, he tested and was found to be above average in all areas. Back to the drawing board. Our OBGYN was beside herself and was honest, that she didn’t know what else she could do to help. I left the doctor’s office in tears, as it sunk in— something was wrong. We felt disappointed and lost, but we continued to pray for the Lord’s direction & to answer our prayers to conceive.

Photo Credit: Cami Jane Photography

Coming to terms with the fact that we were struggling with infertility was overwhelming, frustrating and devastating. We continued to do our best to keep a smile on our faces and even though we are happy for them, it was tough to watch our closest friends and those around us get pregnant with ease. Each month we clung to hope & prayed with white knuckles that THIS would be the month. Walking past baby aisles and periodically making small purchases for the moment I could tell my husband and our family that, “We’re pregnant!”

There were so many times I would visit friends in the hospital just after they had a baby. Filled with joy while holding their precious miracle in the hospital room, I would sit in my car for an hour afterwards sobbing and praying for God to take away my desire to be a mother, if it wasn’t His will for my life.

We never thought we would struggle to grow our family, and nevertheless sought help from a Fertility Specialist after the encouragement of friends through church who had struggled with the same trial. We did our research and made an appointment with one of the top Fertility Specialists on the west coast, with one of the highest success rates for couples struggling with infertility in the nation.

With my husband’s side of things being excellent, our doctor ran me through a few more routine tests and procedures. We were put on a level 1 for our treatment plan— medications + vitamins + multiple monthly ultrasounds + multiple monthly blood work + restrictive diet + trigger shots + timed intercourse. We were excited that this could finally be it!

Three months into treatment and we had no success, so we switched medications, hoping my body would respond better to a different drug. Each month, being harder and harder, as well as becoming more devastated emotionally, physically and financially with no results. We were now classified as “Unexplained Infertility” after 2.5 years of trying to get pregnant intentionally, and almost 5 years unintentionally with no contraceptives. Realizing that there could be a chance we would never become parents naturally, we made sure to continue to keep our marriage as the focal point- going on trips away to spend quality time together, making date night a priority and even going to marriage counseling when we saw that our fertility journey was putting a strain on our relationship.

After a traumatic car accident, ovarian cysts from medication and what felt like countless setbacks, we completed our last round of treatment for level 1 and it was unsuccessful. We were told that we had exhausted the level of treatment we had been trying at (with a 39% chance to get pregnant overall), and with our testing results and lack of fertility insurance coverage, Level 2 (IUI) wouldn’t provide us with any greater odds than that of which we had been trying already. Since I was currently under 30 years old, as well as all of our other tests show in our favor, our doctor was very optimistic and said that IVF would provide us with a 80-90% chance to become parents on one try.

In Vitro Fertilization is intensive and extremely expensive. Unfortunately, our medical insurance didn’t cover a dime. It became more and more difficult to come up with the funds to proceed with fertility treatment, after spending thousands upon thousands of dollars. With over 2.5 years worth of blood work, testing, procedures and medications all paid for out of pocket, we had exhausted our personal finances. This is when we came to terms with the fact we needed to vulnerable and ask for help, so we started at GoFundMe. It was both difficult & humbling to even ask for help for such a personal journey, but we pray that through our transparency & vulnerability, God will be glorified and other couples will be comforted. We knew ultimately the Lord would provide as He saw fit and most importantly, we wanted to give glory to God through this entire journey & process. We knew medically, the longer we waited, our chances for success would decrease, statistically speaking.

In August 2017, we started our IVF journey after raising over $8,000.00 in funds, family donations and pulling from savings we put away over 6 months for this moment. I remember walking into the fertility clinic with $12k+ in cash, because we just wanted to put the money down as soon as we got it and out of our bank accounts. September 2017, I started my pre-egg retrieval stomach injections and boy did they suck. As a wedding photographer, I would have to plan in advance when I would be able to sneak away (in a short window of time) to give myself multiple injections out of sight from guests and my clients. It was physically and emotionally taxing to say the least. As we were a few days out from our egg retrieval and countless injections later, I got the call 15 minutes before a photoshoot that my estrogen levels had plummeted and my egg retrieval would need to be rescheduled for a later date and I would need a whole NEW protocol for medications. I felt like the wind was knocked out of me and tears streamed down my face, as I knew my doctor wouldn’t make that kind of call unless it was in my best interest. Regardless, I was devastated that I would now have to wait even longer to get closer to holding my baby I had been dreaming of.

November finally came. My egg retrieval was a success in medical terms and 30 eggs had been retrieved (Holy Crap!)… my husband and I decided to not do genetic testing for personal and faith based reasons, so we had no idea the “medical” chances we had for a success transfer once reaching day 5 with our embryos. Day 5 came, we got the call that 6 embryos had made it to the end. Kind of crazy when you think about it- your start with 30 eggs, about half of those fertilize and each day a few drop off until you’re left with your find number.

Because my ovaries were SO swollen from the medications and the procedure (the doctor said they were “kissing” over my uterus), we were denied a fresh transfer and put our little babies in the freezer (so to speak) and waited for clearance to do a frozen transfer.

Once again, being a wedding photographer, my timeline had to be very strategic for when we would not only do the transfer and I would be on bedrest, but when our potential baby (or babies) would be born. So while we were cleared for January 2018, we chose March 13, 2018 as our transfer date. Now came the intramuscular injections… I was terrified. For someone who is covered in tattoos, intramuscular injections were something I was dreading the entire journey. I remember that first injection in the doctors office. The nurse showed my husband, so he could help me on a daily basis to do several injections into my upper butt cheek- (enter sarcastic “yay” here). I kept asking question after question to avoid the inevitable needle going into my tooshy. Although, I will say that they got better or more tolerable with time, it was still a task I don’t look back on fondly. Like with my stomach injections before egg retrieval, I had a routine for the process before and during my injections. I would take deep breaths to relax myself—because getting injections while tense isn’t fun for anyone— and I would put on worship music to focus on, while getting stabbed with a needle. I would envision myself pregnant and ultimately holding my baby at the end of all of this.

Transfer Day came after what felt like forever building up to it. We transferred two non-genetically tested embryos into my womb and waited 10 days for the blood test that would tell us if we had indeed became parents. I still remember that day like yesterday— it felt like waiting for Christmas morning as a little girl… would I get the present I had wanted all year long? We went and got the blood work done as soon as they opened, so I would hopefully be one of the first people to get a call later that afternoon with the results. Then we waited what felt like an eternity to get the call. It was around 3:00pm when I saw the call come in and I anxiously answered it. My nurse coordinator had become a good friend to me over the years of treatment and heartache. She messed with me- asking me how I felt, if I had any symptoms since the transfer and then asked me if I wanted to know the results. “You’re Pregnant!” I heard on the other end of the phone and tears streamed down my face, still in disbelief. I had never heard those words, had never seen 2 lines on a test… how could it be?! Immediately after hanging up the phone, I went to pee on an old test I had in my drawer and quickly 2 pink lines showed up. I held the test and sobbed tears of joy… IT WORKED! All those years of heartache, pain, frustration and tears brought us to this day. Quickly, I realized I had about 45 minutes before my husband would be home from work, so I rushed to the store and got a digital test and balloons that said “BABY” to surprise him as soon as he walked through the door. As soon as I got home, I hit the record button on my phone and waited for his reaction. Right after my wedding day, it was the most joyous day of my life.

Photo Credit: Cami Jane Photography

Fast forward December 3, 2018. The day our little girl was born. One of our embryos made it and we got to hold our little girl in our arms for the first time. It was ALL worth it. Every tear, every heartbreak, every year, every dollar, every injection and all the prayers for our precious baby. There were several moments I had felt like giving up along our road to becoming parents. Several times I broke down crying at the idea of becoming 30 and not having a baby in my arms and no one to every call me “Mom”… but with faith, fight and an amazing team of gifted medical professionals, our dream is now reality. If I could give advice to anyone in the trenches of infertility, it would be to not give up. Your miracle could be on the other side of the storm you’re currently in. Find yourself a good community of others going through the same journey, whether online or in person. People who have never gone through it, unfortunately will never understand no matter how hard they try. Try to not let well-intentioned people with bad advice or unsolicited suggestions get in your head and take away your focus from your goal of having a baby. Keep your eye on the prize and don’t lose faith.

Photo Credit: Cami Jane Photography

If you’d like to connect with Jessica, you can find her on Instagram, Facebook, or her website!

Babe In My Arms, Babe In My Belly, Babe In My Heart, Blogs, Uncategorized

Infertility and Insurance

April 18, 2019

Written by Elena Ridley, Guest Blogger

Ah infertility, it was a word I was not super familiar with until my husband and I started trying for babies several years ago.  Never ever in my life had I considered I would be affected by infertility.  No one in my family struggled with it, I had normal cycles and had never had any issues in the past, but once we began trying and month after month passed with negative test after negative test, I began to familiarize myself with the word.  There were many tears shed about it before it was even properly diagnosed.  There was a feeling of isolation because so many others were conceiving right before my very eyes, yet here we were two years into it and NOTHING.

Although I had spoken to my midwife after 12 months of TTC with no pregnancies, it would be another full year before we would be referred to a reproductive endocrinologist.  In those first two years we tried a lot of silly things but we were desperate.  Then we began doing things like having blood tests, semen analysis, and hysterosalpingograms.  When terms like this started to become part of our reality, I knew there was something wrong.  When I couldn’t hardly pronounce the word of the test I was having done, it was an indication that maybe there was a reason for our inability to get pregnant, it was then that I became very intimate with infertility.

Infertility is one of those things that most people don’t ever believe will happen to them, I was one of those people.  There are some women and men who know ahead of time that they could struggle to have children, however the vast majority really have no idea that it will become their reality.  Like many other diseases, infertility does not discriminate; it doesn’t matter what your race, gender, sexual orientation, religion, or social class is—infertility may choose you.  It can affect anyone from the poorest of the poor to the richest of the rich.  The only difference is access to infertility treatment.  The average cost of a cycle of IVF is around $20,000 and the average cost of an IUI is around $5,000 and the real kicker is there is absolutely NO GUARANTEE that it will work. 

One of the most frustrating parts of all of it is that most people are not provided with insurance coverage for infertility treatment and although some states are “mandated” to provide coverage, if your employer is self-insured as many are, they do not have to follow the mandate law in their state.  It makes access to infertility treatment extremely frustrating, expensive, and limited.  Most people do not have an extra 20k laying around to spend on something of this nature.  So many people will max out credit cards, take second mortgages on their homes, or forego treatment at all because of the cost being so high. 

I was lucky that when I was pursuing infertility treatments my insurance plan covered infertility.  There were no limits to what it covered and I was able to have 2 IUIs, 3 fresh cycles, and 3 frozen cycles covered by my insurance and paid very little for my treatment.  My coverage included medications as well along with all the monitoring appointments and bloodwork.  I was so fortunate for this because at the time we had just began building our home as well and without that coverage we never would’ve been able to afford multiple rounds of treatment.  When we ventured down the path of donor eggs, the game changed as insurance would not cover the treatment of another person and we learned for the first time what it was like to spend thousands of dollars on our gamble with donor eggs.  We were also very fortunate that we finally did get pregnant with donor eggs after so many failed rounds with my own eggs.

In 2017 our union contract was expiring.  I work for a utility company in Illinois and under our previous contracts we had our own insurance plan that differed from that of management employees.  Our union insurance plan covered infertility, our management plan did not.  When our contract came up in July 2017 our company pushed very hard for all employees to be on the same plan, the management plan.  I was so crushed because I never considered that I would lose the coverage, yet here it was, presented right in front of us and something the company was not budging on.  Originally we voted down the contract but the company came back and said that another “no” vote would result in a strike and upon our second vote, the union voted in the new contract with the new management insurance being part of our agreement.  Since that contract was put into place, we have attempted two frozen embryo transfers for baby number 2.  Now that we do not have coverage, we have had to pay in upwards of $10,000 for these two cycles.  The outcome of both of those cycles ended in pregnancy loss and no take home baby.  That’s TEN THOUSAND dollars with NOTHING to show for it, and a large percentage of which would’ve been covered by insurance if our company would consider infertility treatment as part of their plan.

Now that this coverage has been taken away from us, it’s put a huge financial strain on being able to continue treatment.  Before, what was actually very accessible for me has become a huge burden.  I feel like we’ve actually taken a step back on something that we should be taking a step forward on. As the topic of infertility becomes less and less taboo, I see so much progress forward yet here we are progressing backwards. To say it’s frustrating is an understatement.  Although I have no idea where the outcome will go, and there is a possibility it will go nowhere, I am going to be taking on the task of asking my employer to consider providing infertility treatment coverage to its employees.  

With the help of Resolve – who already has steps in place to help people have the conversation with their employer about providing coverage – I plan to ask our benefits department about a rider to include infertility treatment.  Although there is a big chance the answer will be no, I feel as though it is my duty to ask.  I wonder how many of my fellow employees are struggling to get pregnant, are struggling to fund their treatment because we offer none, who wish there was coverage but don’t know the first thing about how to go about asking for it—I hope that maybe I can convince our company to help us progress forward with infertility treatment and help make it more accessible for people who desperately need it.

If you live in a state that mandates infertility coverage like I do but your employer is self-insured so they are “off the hook” from following these rules, I would highly suggest reaching out to your HR or benefits department and demanding change.  It is heartbreaking and appalling that so little has been done in terms of coverage to help family building.  I hope that one day we get to see all states mandate infertility coverage and self-insured companies begin considering how important and vital this coverage is to so many people as 1 in 8 couples in the United States struggle with infertility. 

Infertility will never go away.  It’s something that will continue to affect couples and the statistics may continue to grow as more and more people continue to share their struggle openly.  We must continue to make infertility a topic that can be openly discussed, we need to make the public aware of the disease and help those who do not suffer with infertility better understand the complexity of the disease and the financial burden that comes along with it.  There are so many wonderful ways to build our families besides the “traditional” ways, surrogacy, donor sperm, eggs, or embryos, adoption and more allow for couples to create their family dynamic in ways that were not always possible years ago, however we still lack the accessibility to these options being feasible because the costs are astronomical which is something we need to continue to advocate to change!

If you’d like to connect with Elena, you can find her on Instagram or her Blog

Babe In My Arms, Babe In My Belly, Blogs

Finding the Right Doctor for Your Journey

April 10, 2019

Written by Lindsey Lederer, Guest Blogger

It’s true what they say – so much can change in a year. One year ago today I was two days away from my embryo transfer and I was full of hope, but my heart was guarded. I had been on this road before and both times I hit roadblocks. This time felt different. I had a different protocol and a different mindset. I had chosen a word to be my theme for 2018. My word of was “surrender”; To let things be as they may, and I took this to heart going into transfer day.

The journey of infertility for me was about letting go of the lack of control. I sought to let go of things out of my control and tried to focus on those things I could to help me gain confidence. One of the things I could control from the very beginning were the doctors that I chose to work with and the team I chose to help me on my journey.

Being in the Bay Area, I am fortunate to have so many great practices around me to choose from. I wanted to find the right one for me, however, and my advice to anyone looking to start or restart this journey is to make sure you’ve done your research – after all, your future children depend on it. I called around to a variety of clinics and described to the teams what I was looking for and, I think because I was able to articulate what I knew would be best for me, they matched me with the perfect doctor to accompany me on this journey.

I narrowed down the clinics by using the following websites and I would recommend them to anyone embarking on a fertility journey:  https://www.sart.org/ which is helpful to see the success rates of the clinics, and https://www.fertilityiq.com/  which provides helpful reviews of clinics/doctors from patients as well as a variety of resources and articles about the infertility world.

I had met with other doctors before and wasn’t satisfied until I met with Dr. Reid. Dr. Reid was a good fit for me because she had the ability to be direct and at the same time deliver information in a practical yet sensitive way. She also was a great fit for me because she didn’t stand by a one size fits all protocol which I really appreciated.  My advice to anyone going through this journey is to find your Dr. Reid. She’s one of my favorite people in the world, not only because she helped me get my beautiful little girl, but because she never lost hope and never stopped putting the pieces of my puzzle together. It’s easy to lose hope on this journey. It’s easy to want to throw in the towel. I was on the roller coaster for many years and experiences two miscarriages and 4 canceled FET cycles. I can remember being frantic and asking what else I could do, and Dr. Reid was always there to lay out the new plan of action and provide comfort.

 At one point I was considering if I should go through another IVF cycle to make new embryos (I had 5 frozen at the time) and she said something to me that I will never forget. “I know it’s hard to see in the future Lindsey, but I see baby showers. I see the family you have always wanted; you have 5 beautiful embryos and I feel confident that we (I love how she always said ‘we’) can get you pregnant. If we get to a place where we need to make new embryos – we will. But for now, we aren’t there yet.”

When I interviewed clinics, this is exactly the kind of care I was looking for. Yes, I wanted a clinic that had great numbers and results on paper, but I wanted to work with a doctor that personalized my journey and provided optimism and assurance when the road got hard and that is what Dr. Reid did.

I just saw Dr. Reid last week and was able to introduce her to my daughter and it was hard to fight back the tears. My double rainbow baby was meeting the person who helped get her to us. A year later I would have never imagined being where I am today. I am beyond grateful and don’t take anything for granted.  Find your Dr. Reid; it helps make the journey a little less daunting and when they can take the grey out of your saddest days to help clear the sky, it makes the journey more bearable.

Babe In My Arms, Babe In My Belly, Babe In My Heart, Blogs

April Fools Pregnancy Announcement

April 1, 2019

Written by Elizabeth Angelakis, Guest Blogger

Exactly two weeks after my D&C is when I would have been 13 weeks pregnant, which happened to fall on April 1st. 

I found out I was pregnant at the beginning of February after trying for a couple of months and we were so excited to get pregnant so quickly considering I had endometriosis and didn’t know what my fertility would be like. I would have been 13 weeks pregnant on April 1st and thought that would be a fun way to announce, except no one would believe it so we went back and forth on waiting until the day after. We eventually decided it would be fun to do it on April fools and follow with another announcement the next day. So April 1st played a big role for us in my pregnancy. 

On March 15th, at 10.5 weeks we went to our first ultrasound and got the devastating news, there was no heartbeat. At first I was in denial and kept trying to calculate everything to make it all add up since the baby was measuring at 6 weeks. My doctor called it a missed miscarriage which I had never heard of before. 

I was really dreading April 1st coming around and wanted to skip over it knowing it was supposed to be such a special day for us. It was a Friday morning, and when I woke up that day and grabbed my phone to scroll through Facebook, the first thing I saw was a pregnancy announcement, from someone relatively close to me. It was a photo of an ultrasound and it was as real as they get. My first thought was, why am I finding out on Facebook and shouldn’t I had been told personally, especially after what just happened to me? I believed it for a little while and then given the day I started to question it. I had so many mixed emotions of jealousy, thinking how unfair it was and this was supposed to be me announcing my pregnancy today! when I realized it was a ‘joke’ I was furious. Why was this person being so insensitive? How could they do that to me? 

The comments were both, people congratulating them and others calling them out on their prank. I was devastated. As soon as I confirmed that it was in fact an April Fools prank it hit me even harder. And just to be clear, this was everything BUT funny. Although I doubt this was the intention, I felt mocked and targeted as if all of this was to make fun of me and rub it in my face – the timing of it was all just terrible.

I cried over this, a lot, because to me it wasn’t just that this person knew what I was going through and didn’t understand it, or that it was just a bad joke, it was because this was supposed to be my special day to announce a REAL pregnancy and I had nothing. 

My day of celebrating what would have been a safe milestone was a day of grief as I sat there still recovering from my D&C, and trying to comprehend it all.  

I had no idea if I could ever get pregnant again or have a healthy pregnancy. I felt so awful and as if everyone quickly forgot about what I just went through. Granted no one needed to hang around and cry with me until I felt ok and accepted this but making jokes about something that I was grieving over felt terrible. Everyone had moved on with their lives but I was still dealing with a loss. 

The comments kept adding up and Facebook hated me that day too because it was constantly on the top of my news feed. Reading them made it even worst, because again this was supposed to be me. Every time I saw it come up I wanted to write “IT’S NOT TRUE!!!! Not funny, please let’s move on”. 

The weirdest part to me was that this person had gone through a loss themselves. How could you forget how awful it is and be ok to joke about it while someone so close to you is suffering? None of it made sense to me. 

After pointing this out to a few people I got some comments like “it’s not a big deal”, “you’re over reacting”, or “it’s just a joke, don’t be so sensitive.” All of that made it way worse. How dare you tell me I’m overreacting? I just lost my baby and I don’t want to hear about how excited you are about your fake pregnancy when I was supposed to be the one telling you about my real one. Obviously not everyone thought I was crazy to be upset and agreed with me that it was out of line but what was I supposed to do about it, pick a fight? That’s not how I deal with things because not everyone understands so I ignored it and moved on. 

This April Fools joke is one of the most common ones you hear every year and I never thought anything of it until I dealt with it first hand. There’s nothing funny about pretending to be pregnant, especially in today’s lifestyle with social media where so many are watching. And the thing is, you don’t know who’s watching. You don’t know who’s behind that screen and what their pregnancy, or fertility journey is like. To you it might be so innocent but there’s someone out there that will be very hurt over it. 


What The Fertility

Subscribe to our exclusive content, blog updates and be the first one to know about our awesome giveaways !!!